Genny Jessee

Genny is the executive director of the June Jessee Memorial Foundation, a nonprofit organization dedicated to providing relief and support to children with medically complex, neurological conditions and their families, offering resources, services, and connections to help make their lives easier. She and her husband, Matt Jesse, founded the JJMF in 2016 in honor of their brave daughter, June Jessee, who fearlessly faced the multiple, life-limiting conditions she endured. Genny leads all of the JJMF’s fundraising and programming to support children with medically complex, neurological conditions and their families. She curates and shares important resources and information through the JJMF website, www.junejessee.org, which has become a leading online resource to help parents and caregivers in the St. Louis area and beyond to navigate these chronic, neurological conditions with no specific diagnosis amid a complicated healthcare landscape.

As the lead editor and writer for the JJMF’s blog, Sorry to meet you this way, Genny’s candid and heartfelt blog posts bring to life the challenges, concerns, joys, and emotions families of children with undiagnosed, neurological conditions face, tackling a wide-variety of topics. Genny’s blog is frequently featured on TODAY Parents and Scary Mommy, as well as international parenting websites. Additionally, she has created both online and in-person opportunities for parents to meet and make connections with one another, finding comfort and support from those who understand the significant obstacles of the conditions.

In 2020, Genny was honored with the Missouri Athletic Club Woman of Distinction Award in recognition of the positive impact she has made in the region. She additionally was a finalist for the “Best Kept Secret” in the WEGO health awards for her contribution of impactful content in the online health community.

Previously, Genny held public relations and communication positions for leading agencies in Washington, D.C. She is the mom of two young boys and enjoys spending time with her family, journaling, exercising, needlepointing, reading, and binge watching her favorite TV shows.